Category: Uncategorized

Being a Influencer

Hey guys yes I’m back again,this time with a new post.

So about last month I had been super busy doing some behind the scenes work. And I got to work with some amazing group of people on a few campaigns that were going on at the time.

One being getting to work with Lottie London

Lottie London

Which you can head over to my Instagram @marsha_h181 and see the video content there.

And the other getting to do an interview with NHSBT (NHS Blood and Transplant) themselves for sickle cell awareness month you can click the link and view the interview.

https://www.blood.co.uk/news-and-campaigns/the-donor/latest-stories/a-total-new-lease-of-life-a-total-pick-me-up/

So yes I’ve been busy busy bee.

Someone actually called me an Influencer and I had to say no I don’t think so. But they said yes you are because you are influencing the world and getting more people to speak up about living with Sickle cell. So I guess when you put it like that I guess I am an Influencer something which I never saw myself in that light at all. I can honestly say I fell into this role I didn’t wake up and say ah yes that’s what I’m going to do with my life. No no I was just going about minding my own business and being me all I can say is that I guess the lord put me on this path and I will walk it and enjoy the journey for whatever or wherever it leads me.

All I can say is follow your dreams because anything is possible. And thank you to everyone who has given me opportunities to tell my story and help to spread the message about sickle cell.

Till next time warriors

I’m Back…

Hey guys how’s everyone been doing? Yes I have been missing from sometime, so firstly let me start by saying I’m sorry 😭. But I truly have miss all of you and I want to say thank you for not jumping ship.

So what have I’ve been up to? I’m guessing you all want to know where I have been and what I’ve been doing? Well go grab a drink and get comfortable because it’s going to be a good one lol.

well let me start of by filling you in so I have been so busy being a Donor Carer. I know some of you are wondering now what is that? well I’m tell you so I now work for the NHS Blood and Transplant organization taking people’s blood, they come in and donate it to help with people who need regular blood transfusions or any other medical condition which requires to receive blood. Did you know that on average it take 100 people to save someone’s life.

Why did I choose this occupation you say? Well for me as some of you know I receive 6 units of blood every 7 weeks, and this was a way of me getting the opportunity to say thank you to all those who take their time to come and donate blood in order for me to live a semi normal life. Do I enjoy it? Of course it’s so rewarding getting to meet new people everyday and asking them the question of “what brought you in today? Or “what’s your reason for wanting to donate blood?” An the stories I hear, some have you wanting to be in tears but you’re having to hold them back to be professional and some are because they know someone who has Sickle Cell and want to help. An that to me makes them a hero in my eyes and for me getting the opportunity to say thank you is amazing.

so that’s what I have been doing, yes it’s challenging because you’re in your feet for a large majority of the day but I love it and wouldn’t have it any other way. And to me it’s a barrier I get to break down and tell my other Warriors that there is nothing you can’t do and I think I’m the only sickle cell person who receives blood to be doing my job. Once you set your mind to something do it I say within reason of course I don’t want to hear or see “but Marsha said I can do it lol” no no no I said within reason so leave the sky diving alone walk away lol 🤣.

Yes while doing this job it does take a toll on my body, but I have been one of those warriors who listens to their body and I don’t over push my body to the limit. Yes I still get my mini crisis from time to time and still work but I have an amazing team who understands and when I’m having a off day they help to pick up the bits that I just can’t physically do, so that helps in a huge way.

Within this role I have met some amazing people and I have gotten the opportunity to be involved in some amazing campaigns and projects, an I have this job to thank for it. Not only do I get to share my stories with donors but I get to educate people who may not know about sickle cell or enough about it. An what’s so amazing is that when you tell people that I have sickle cell and receive blood I get the shocked an amazed look of you don’t look like a person who is sick. And then our conversation flows and they leave the session feeling like they are super heroes. An to me that’s the best feeling in the world.

so would I change jobs? No not for a second the only thing that I will do is to continue to grow within my role and be the best Donor Carer out there and continue to help save lives and spread the word about sickle cell.

well until next time readers and yes there will be a next time as I have so much to share the campaigns I’ve done and also what the choir is up to. So stay tuned.

and don’t forget always slay your crown 🥰😘

The Real me.

Hey, guys thanks for coming back to my page after so long, and to continue to support me on my journey. I have been battling alot on this journey and at one point I lost my love for writing, hence why I haven’t blogged in awhile.

Who’s is the real me?

I am not the pictures you may see me post on my social media. Behind every smile is a different story and emotion, yes my photos may look like I’m having a blast and smiling so hard, but deep down inside my body and mind are thinking otherwise.

Everyday I’m nervous and scared but I embrace what the day may hold. Now your most probably thinking why are you sacred I don’t look it or show it. Well… My body gives no warning lights or signs when pain might strike it just pops up like like a uninvited guest for a cup of tea. Truth is every time I close my eyes to sleep I wonder will I be disturbed in tonight’s sleep by pain, will I wake up to pain, will it pop up while I’m at work or enjoying my time with friends. You can never plan a day because there is always the unexpected just waiting for it’s glory to shine.

The days were it is plain saling I let out a sigh of relief and wear the biggest smile on my face, and say thank you today was a good day regardless if I’m half tired and just need a bed. I rather be that then in pain.

Everyone always comments or say I admire you, your so strong for dealing with your health. Don’t get me wrong it is nice but, at times I wish I could say if you only knew half of what I go through.

So yes you may see the smile me laughing or the happy photos that I might post. But behind it all is worry. Even the strongest person needs that shoulder to lean on.

I was watching a small Instagram story by sweets Lewis. And he spoke about over coming his fear and I thought I need to over come mine and share just exactly what my brain thinks at times.

They say “A picture can tell a thousand words” but the question is can it tell the right words?

Goodbye To A Beautiful Angel

What’s up my fellow warrior’s hope you all are ok and in good strength.

This week’s blog is of sadness recently I had some bad news, which left me, the B Positive Choir, family and friends in such heart ache.

The world have lost a beautiful angel called Simonne kerr, a good friend of mine. She was taken from us so quickly from such a brutal incident that she didn’t deserve.

Today’s post is not to look at the negative of what happened, but to celebrate her life from what she achieved.

She was the life of the party where ever she went, she always brightened up the room. Her laugh and smile was very infectious,you was always in ore of her. She loved her Snapchat filters and she always wore sexy shoes that I couldn’t quite work out how she walked in them.

She always use to say “But do they not know who we are though” anytime we didn’t get noticed or was put to the back of the line. She made me laugh on our train trip to Birmingham, when we all could smell burning and thought the train was on fire. Only to turn round to see simonne, straighten her hair with her hair straightener while dancing to music.

She always loved her bashment music singing out loud and then laughing when she cought us looking. She also loved a game of dominoes rolling up her sleeves and fixing her chair getting ready to slam down them doubles and six’s.

When it came to perform in B Positive Choir she always gave it 1000%. Simonne always was on point with her performance and the lyrics, her favorite song was “The Battle” written by lurine Cato. This song touched her heart deeply as it described her struggle that she had overcome.

Even though loosing her son 3 yrs ago to sickle Cell, Simonne used that drive, passion and determination. To complete her degree and become a qualified nurse, caring for people who suffered with Sickle Cell. While helping to get awareness to the nation to donate blood through her work with B Positive Choir.

Simonne you are a beautiful soul and the true meaning of the word warrior. Even though we may not see your beautiful smile again. I know the memories that we shared will always live on in our hearts.

So I end my blog on this beautiful poem, written in memory of you by “Calvin Campbell from Red Cells R Us and fellow B Positive Choir member”

I BOW MY HEAD

I bow my head
And say a prayer

I bow my head
And wipe away a tear

I bow my head
And remember her life

I bow my head
And think of all the good times
The laughter the songs we sang

I bow my head
Wishing I could see her one more time

I bow my head
And ask the Lord why

I bow my head
This pain I can hide

I bow my head
Hoping beyond hope
I’ll wake and she’ll be fine

The loss of a soul
That gave so much and still had much to do

I bow my head
Feel that anger grow

The Lord forgives
But that’s a road I will never walk

So I bow my head
One last time

Look up to the heavens
Remember the red boots when we sang
and all those times you made me smile

By Calvin Campbell (c)

RIP Simonne untill we shall meet again 💔🙏🙏

My journey

Hey my crown slayer’s I’m back with another blog. I know, I know, I have been so busy. I haven’t had the chance to sit down, and write a blog and tell you what’s been going on.

But this blog will be a good one to read.

So I’m super excited to be sharing with you my journey, and what I have been up to these past couple of months.

For all of you who follow me on my social media sites, like Instagram or Facebook. Would know that I have been doing alot of media stuff.

well this is down to the fantastic choir I’m apart of called “B Positive Choir”.

Some of you would of seen us or me posting awhile back ago about going on the MOBOS with B Positive choir. Well we are still going strong, stronger than ever before.

And I can now say that we are on BGT (Britians Got Talent) yeppie I have been holding that in for so long, it has been a killer lol. If you haven’t seen our performance then be sure to click the link Bpositive audition on BGT .

In between practicing, I went to Houses Of Parlement, we’re we got to be apart of a great experience with the sickle cell society. They have issued a “Standards for the clinical care of Adults with Sickle Cell Disease in he UK” which I will do another blog telling you all about it.

But in a nut shell we should now get treated in any hospital in the uk at the same level of standard care so no more getting treated diffrently becasue were in a diffrent brough or person. ” Celebrate the good news”

we recently was on The One Show with the BBC , so yes I’ve been a busy bee.

My whole experience has been amazing from newspaper interviews right to tv interviews, I wouldn’t change a thing.

I would like to say thank you to all my followers on social media and a major one to my B Positive Choir family. Your support has and is amazing, when I’m in a crisis and still pushing to go practice because I don’t want to miss out, and keeping me laughing through the pain. All I can say is thank you and I love you all. You guys are my Rock.

Keep supporting B Positive Choir and myself for helping to raise awareness for Blood Donations and also for Sickle Cell. let’s make a difference and save a life. If you would like any more information on how you can register to be a donate blood clik the ” B Positive” photo

With that said till next time my slayer’s stayed blessed in the words of B Positive

“Be a blessing. Be blessed and stay B Positive”

The pain Scale Method

Welcome back guys.
I’m keep this post short and sweet ,ok so while having this crisis (pain) many people have been advising me to go to hospital. And if you know me well that’s the last place I’m heading to. So here is how I judge when it’s time for me to take a trip to the hospital. I use the wonderful pain scale method, not only does it help my family know when to call it a code red but also for my son he knows what mood mummy will be in and when not to push my buttons. When this pain first started I was on a 8 intesnse I was short tempered , frustrated you name it I was that. At this point I just wanted everyone to stop talking as it was annoying me and just leave me to work it out on how best to manage the pain. I know it sounds bad now but this is the reality of what we experience how our moods can change even though we don’t mean it to. And as old as I am I had to try and refrain myself from being rude to my mum because I didn’t need a box on top of the pain. I love U mum, but lucky for me I have a mum who understands what I go through and makes into telling me off a joke to make me laugh. And as my sister’s will tell you I’m the cheeky brave one with no filter to my mouth 🙊. Today I’m a 5 Distracting pain yes it has stopped me from doing a few things and yes I still am a bit snappy (sorry to my boss for being rude today suprise I still have my job) but people this is my reality and many other people who suffers with this illness. Everyday is a new battle we fight we just have to make sure we’re well prepared for the fight.

Always keep your head up everyone and a smile on your face. Till next time and remember always slay your crown .

Even Flo

Hey guys welcome back to my page if your new to my blogs welcome and thank you for joining.

So this blog post will be about my journey taking Even Flo. Alot of you who follow me on my Instagram would of seen me posted little short post about it. So this will be me just going into more details about it. I have been taking this for about 2 months or more now, and I have to say I have noticed a change within myself the general over all feeling well within my body.

I had seen various post about this product and been told about this product from other sickle cell suffers. And the stories that I got told I was like I’m sold where can I get a hold of such amazing product. I have to point out that Even Flo is a holistic health method. So it’s all natural ingredients I have not stopped any of my normal medication, and I do not advise you to do so. Please speak to your doctor’s before doing anything. So on top of my daily medication I take this also.

I was approached by a UK seller as this product is only sold in the US, her Instagram is @freedomfromchronicpain if you guys want to go and check her out. Amazing lady, we got talking and was offered to give Even Flo a try. So I gladly accepted and thought yes my prayers have been answered. We spoke about the benefits that this product can give you and also can double up as a pain relief , at first I was like no way but the more we spoke about it the more I was sold.
So the day I received mine I took it straight away, and funny enough later on in that day I could feel a small crisis coming on. And no it was not because of taking the medication before u all think this. So I done what was told and what’s on the bottle that u can take one capsule every 2 hours to help with the pain. No word of a lie guys I was surprised that my pain started to feel manageable. Now I wasn’t totally pain fee, but the pain was at a level where I still could continue with my day. I wasn’t constantly thinking about the pain it didn’t put a holt to any of my plans. As the day went on I have to say taking it every 2 hours it did disapaire in the end with a little bit of help from a smartie (paracetamol for all my new reader’s). I didn’t stop taking it the next day I just followed the instructions on the bottle 1 twice a day and it’s like my body had it’s spring back in it’s step lol.

Now a few weeks had passed and I was coming up to my EBT (exchange blood transfusion) normally around this period my body becomes tired, I’m pushing myself to complete a day not alone a week. But hands down guys on Even Flo, I didn’t notice my body was due for exchange if my hospital didn’t call me to remind me of my appointment. Even my work colleagues noticed a change to my body lol, I’m normally like a snail at work and the grim Reapers best friend literally lol.

Now I was like no way this medicine can have my body be feeling this type of way. So yes naturally I stated telling all my sickle cell friends and they were like where can I get some lol. But the other experience where I was totally blown away by was. I was getting a start of a cold as some of you know I work with children so yes your prone to pick up whatever they have even with my son, if he has a cold I’ll be sure to get it sometime down the line. So any way I stated to get the sore throat, the sneezing etc the general oh no I’m getting a cold symptoms. Now no word of a lie I took Even Flo every two hours and in the morning praise be to God I was like what cold. Yes people it had gone it didn’t develop any more into a horrible cold. I was amazed and it takes alot to get me amazed trust me. The following week my sister who is also a sicker started to get a cold I gave her 2 tablets and told her to take one now and one later the next day she texted me saying where can I get some lol I felt like God lol I had a magic tablet lol.

Now I’m not being paid or sponsored to say any of this as some people may think this and it’s totally not true. This is my own personal experience and truth, I have been recommending this product to every person that I know. Not only does she do products for just sickle cell people, she can also help you with other products for other conditions. But her main stock it for sickle cell, I will be continuing with this product as I’ve felt a change in my body and I like the feeling my body is going through the more energy the less tired feeling.

Some people have tried it and said it has not worked for them but you have to be prepared to be feeding your body with the right foods. Yes i hold my hands up I’m a foodie and my sister’s can vouch what I’m like when I don’t eat lol I still have my odd take away etc don’t judge me lol and continued to take Even Flo and I have noticed a change for myself in my body. Everyone is different so just because something may work for me may not necessary work for someone else. I’m just sharing my experience with you all, it’s up to you to decide what is good for you.

Till next time everyone

Keep safe and blessed and always slay ur crown.

Good Bye To 2017

Wow what can I say? First things first thank you to God the creator of my life. Without him I would never been on this journey today and living the life that I’m living. And secondly thank you, to you guys my supporter’s. You guys have been my most biggest inspiration, without any of you I don’t know where I would be today the love and support you give me word’s can’t describe how you all make me feel and the drive that you give me to keep on going.

So normally they say for a new year, that’s your ment to make new year resolutions. Well I don’t have any it’s just to improve on the goals I already have laid out for me by God,as he directs my journey to where it needs to go.  Yes I may of had some intervene with it, but no matter what I do, he always pulls me back on track. 

I will be using all my experiences from 2017 as learning tools, not looking at them as in a negative effect, but as a stepping stone to improve on to achieving better goals. Many doors opened for me in 2017 mostly some I didn’t expect at all and gained new friends along the way to. An yes a few doors closed that involved personal issues, but those I have left in God’s hands to handle. And only he knows why they closed, I’m waiting patiently for him to open the next door. 

If anything 2017 has taught me that life is precious and we only get one chance to do anything with it, so we should make it all worthwhile. So when we do reflect on the past we can all smile and say I made it the best I could.  

I don’t know what 2018 will bring me but I do know for certain that I will be embracing my blessing with open arms.